Developing a core set of outcome measures for OAMPs was determined to be a priority for the JEI. This core set of measures will enable the testing and comparison of existing and novel models of OA care service delivery particularly the comparison of clinical vs cost-effectiveness.
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Work to date
Since forming in 2019, the JEI Outcome Measures Work Group has:
- Identified domains (categories) of outcomes/characteristics of potential interest, along with specific constructs within those domains. The broad domains identified by the group include Patient Outcomes (e.g. pain severity, function), Implementation Metrics (e.g. number of patients engaged), Patient Characteristics, Clinic / Practice Characteristics (e.g. geography), and Clinician Characteristics (e.g. type, specialty)
- Developed a plan for a Delphi survey, including respondent categories (and criteria), survey structure, and target sample size. Respondent categories include: 1) Academic researchers 2) Healthcare professionals who treat patients with OA 3) Clinician researchers 4) Patients with OA and patient advocacy representatives 5) Health care administrators/policymakers.
- The first round of the Delphi survey was launched in April 2021.
If you are interested in joining the working group or would like to find out more, please contact Kelli Allen, PhD.
Clinical Outcomes of OAMPs: an international consortium using Individual Participant Data (The COOPERATe Study)
There are many different models of service delivery of international OA Management Programs (OAMPs) that have been implemented in different healthcare systems. The outcomes of these different international OAMPs are unlikely to ever be compared in clinical trials, however, prognosis research methods provide us another way to comparing participant outcomes of these different OAMPs.
In the COOPERATe study, we will examine a range of outcomes of people with hip or knee osteoarthritis who have participated in existing OAMPs. We will identify prognostic factors at the individual participant level that are associated with improvements in pain and function, and other key outcomes. We will collect and compile individual participant data (IPD) from eligible clinical cohort studies into a dataset that will be stored in the OA Trial Bank. The study protocol can be accessed via the OA Trial Bank website or email Jillian Eyles.